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Overview of Program

My DIPG Navigator Program The devastation that comes with a diffuse intrinsic pontine glioma (DIPG) or diffuse midline glioma (DMG) diagnosis can leave a family in shock and disbelief. Discovering…

Meet Our Team

We want to ease this journey as much as possible by helping you understand the disease and navigate your options, and by making sure you are connected as quickly and…

About the Disease

What is DIPG/DMG? DIPG is a diffuse intrinsic pontine glioma. DMG is a diffuse midline glioma. Both are particularly aggressive brain tumors typically found in children and young adults. Learn…

What is DIPG/DMG?

What is DIPG? Diffuse intrinsic pontine glioma (DIPG) is a highly aggressive, difficult-to-treat brain tumor found in the area of the brainstem known as the pons. There are three parts…

Cause of DIPG/DMG

This ability to analyze brain tissue has allowed researchers to gain a better understanding of this disease and make progress toward finding a cure. DIPG is not known to be…

Prognosis

There are some instances of longer term survival; however, the average survival for a child with DIPG or DMG is about 9-12 months. About 10% of patients survive for 2…

Understanding the Tumor

Gliomas account for about roughly 30% of all brain tumors and are classified by cell type, grade, and location. DIPG (diffuse intrinsic pontine glioma) is one particular type of glioma….

Navigating the Disease

Where to Start Facing a DIPG/DMG diagnosis is overwhelming. A team of doctors who specialize in DIPG/DMG offer a set of Best Practices for you to consider as you get…

Diagnosis

Symptoms & Diagnosis Your child may have a range of signs and symptoms leading you to seek a medical evaluation. After the evaluation your physician will likely order a CT…