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A typical DIPG/DMG diagnosis may involve a CT Scan or an MRI

Symptoms & Diagnosis

Your child may have a range of signs and symptoms leading you to seek a medical evaluation. After the evaluation your physician will likely order a CT or MRI scan. Click here to learn more about what to expect.

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Navigating the disease

Initial Questions

With an aggressive disease like DIPG/DMG, decisions need to be made quickly. We can offer suggestions on some of the key questions to ask your medical team.

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Second Opinion

Second Opinion

A DIPG/DMG diagnosis comes with difficult treatment decisions that need to be made quickly. Getting a second opinion from a medical center that specializes in DIPG/DMG tumors is highly recommended.

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Biopsy Considerations

Medical professionals who specialize in DIPG/DMG believe biopsies are a helpful tool to inform treatment. Tissue samples from the biopsy help to determine the best possible treatment options for the patient.

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Steroids

Steroids may or may not be prescribed for DIPG/DMG after first being diagnosed to help manage symptoms. It is important to consider the pros and cons before making a decision.

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For Families, by Families

Parent-to-Parent Advice

This program was created by families who have walked this path before you. As some parents have reflected on their own journeys, they wanted to provide recommendations for you to consider.

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