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Sharing Data: How to Help Research

Commonly, patients’ families feel helpless to combat DIPG or DMG. One way to help in this fight while navigating DIPG or DMG is to share blood, saliva, cerebral spinal fluid, cystic fluid, or tumor tissue samples for research.

 

 

Frequently, families of patients with DIPG/DMG experience a sense of powerlessness. One way to help in this fight while navigating the disease is to share blood, saliva, cerebral spinal fluid, cystic fluid, or tumor tissue samples for research. Sharing data is a highly personal decision to be made by your family. Throughout your journey, your decision regarding sharing data may change, and that is completely okay. Below are some of the most common organizations that DIPG/DMG families consider for data sharing: