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Overview of Program

 

 

My DIPG Navigator Program

The devastation that comes with a diffuse intrinsic pontine glioma (DIPG) or diffuse midline glioma (DMG) diagnosis can leave a family in shock and disbelief. Discovering next steps for the best treatment options available can often be overwhelming and must be done quickly.

Our dedicated Nurse Navigators are your trusted source for the reliable information you need to understand and manage care for your patient. With years of experience in pediatric oncology, our nurses will connect you to the proper resources you need to make the most informed decisions throughout your family’s entire DIPG or DMG journey.

Our Nurse Navigators will provide:

  • A guaranteed response within 12 hours
  • Personalized guidance along every step of the DIPG or DMG journey, such as:
    • Understanding the diagnosis
    • Getting a second opinion
    • Locating and getting connected to DIPG and DMG Medical Experts
    • Biopsy considerations
    • Exploring possible treatment options
    • Identifying and helping to get enrolled in potential clinical trials
    • Serving as a liaison to improve physician-patient interactions
    • Handling side effects
  • Education to help understand the medical world of DIPG and DMG:
    • What is DIPG or DMG?
    • Treatment options
    • What to expect throughout your journey
  • Connection to additional support organizations and groups to meet non-medical needs
  • Encouragement and support

Help and Hope Happen Here

Listen to our podcast with Help and Hope Happen Here where Leslie Jared and Lauren Kirages talk about their roles as Nurse Navigators who work with DIPG patients and their families, doing whatever is necessary and possible to try to ease the burden of the worst form of pediatric brain cancer.