This journey can often cause a financial strain on the family. In addition to the resources listed here that can provide financial relief in a variety of ways, the following are some key considerations that you may want to consider:
- The patient’s health insurance should cover many routine costs related to diagnosis, biopsy, sequencing, radiation, and MRI imaging.
- Additional assistance can usually be provided by Medicaid. If you choose to obtain a biopsy, MRI, and/or radiation, the Medicaid program will often require these to be done in your state of residence. There most likely will be a pre-approval process if you choose to obtain treatment out-of-state, and this can present some challenges.
- Consider requesting that a case manager be assigned to your child to expedite approvals for treatment when required and to help manage copays, deductibles, and potential denial of coverage. A case manager can help with appeals for out-of-state care. At times, you may need to contact your U.S. representative or U.S. senator’s office for assistance.