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Help from Others

When your child receives the diagnosis of DIPG/DMG, you may choose to tell your family and friends. Word often spreads fast as those around you want to do something to help.

This period can be overwhelming as you grapple with the best way to process the information provided at diagnosis and to make decisions regarding medical care. Many will ask, “What do you need? What can I do?” It may be difficult to know how to verbalize what you need in addition to not feeling comfortable asking for help. We recommend you engage your well-meaning family and friends in daily needs that will inevitably take a backseat to your new priority of accessing the best care for your child.  

Here are some ideas on how others may be able to provide help for you.