Copyright 2022 My DIPG Navigator All Rights Reserved

Search

Symptoms & Diagnosis

Symptoms The most common symptoms found in patients diagnosed with DIPG/DMG include the following: Facial weakness or drooping Trouble with walking and/or coordination Slurring of speech Trouble chewing or swallowing…

Initial Questions

Medical Team Does your medical team have extensive experience with DIPG/DMG? If so, how many DIPG patients do they see every year? Does the medical institution have at least one…

Second Opinion

DIPG/DMG tumors tend to advance quickly, so medical teams typically want to start treatment as quickly as possible. Doctors who specialize in DIPG/DMG understand this need for speed. Many are…

Biopsy Considerations

Medical professionals who specialize in DIPG/DMG now agree that biopsies are crucial in understanding a tumor’s biological makeup and the key gene mutations that control the tumor cells’ growth. Tissue…

Steroids

Steroids may or may not be prescribed for DIPG/DMG patients after first being diagnosed. If steroids are prescribed, the goal would be to decrease edema (swelling) around the tumor and,…

Parent to Parent Advice

Some of these suggestions may resonate with you; others may not. The important message that families would want to convey is that as you identify your family’s unique priorities and…

Treatment

It is very important to understand and believe that whatever choice the family feels is best for them IS the right choice for that family. No two families experience DIPG/DMG…

Radiation

Radiation Therapy (RT) Standard of care is a medical treatment guideline. It specifies appropriate treatment based on scientific evidence for any given condition. The only approved standard of care for…

Clinical Trials

Clinical trials are the primary way researchers determine if a new treatment is safe and effective in people. Additionally, they determine whether the treatment is more effective and/or has less…

Chemotherapy

Chemotherapy has difficulty crossing the blood-brain barrier. The blood-brain barrier is a group of tightly woven blood vessels surrounding the brain. This barrier acts as a defense mechanism by not…