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Delivery Options

Most patients have traditionally received chemotherapy either orally or intravenously. When these methods are used, the blood-brain barrier poses a significant obstacle to treatment. The blood-brain barrier protects the brain…

Immunotherapy

Immunotherapy is a treatment that uses the body’s own immune system to fight cancer cells. It has been established as a promising treatment strategy for some types of cancer, and…

Compassionate Use/Expanded Access

In searching for a clinical trial, there may be instances in which a patient will not be allowed to enroll due to an inclusion/exclusion requirement. If this happens there may…

Complementary & Alternative Medicines

Complementary and alternative medicines (CAMs) are the use of medications or other products that are not considered standard of care. CAMs may be considered for cancer patients to help decrease…

Where to Start

To help get you started in figuring out some of the most important first steps of your journey, Sabine Mueller, MD, PhD, with input from additional pediatric neuro-oncologists who specialize…

Sharing Data

Sharing data is a highly personal decision to be made by your family if you choose to consider it. Without a significant amount of data from DIPG/DMG tumors, scientists cannot…

Palliative Care

Do not be alarmed if your treating facility offers palliative care shortly after diagnosis. Palliative care is another support system to use throughout your child’s journey and can help you…

Disease Progression

You may also hear the term pseudoprogression. Pseudoprogression is the appearance of a new or enlarged area of tumor growth that can be due to radiation, immunotherapy, or necrosis of…

Beyond Palliative Care

Families who have traveled this path before offer considerations to ease this portion of the journey as much as possible. As difficult as these topics are to consider and discuss…

Other Support

Supporting Links There are many other foundations that offer different types of support including financial, travel, and emotional. Learn More Help From Others Ideas on how others may be able…